My husband, Rob Moore, was diagnosed with Stage IV non-small cell lung cancer in November 2009, and told that he had about 9 months to live. As a never-smoker with no other particular risk factors, this came as quite a shock! This blog was initially intended to keep our family and friends updated on this unwanted adventure. Rob and I shared the writing — it should be easy to tell who’s writing since he’s a much better writer than I am — as well he should be after 18 years as a journalist! I’m just an engineer turned photographer.
For the first 18 months, this blog was private and password protected. However, we now hope that it will also help others who are living with a diagnosis of lung cancer. While lung cancer lags other cancers in terms of research and treatment options, there are more and more options available, and with each year there is more hope for a cure.
Rob prefered not to have comments enabled, but if you would like to send an email, and don’t know his personal email address, you can email me at leslie (a) rockskipper.com
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December 31, 2011 at 10:50 pm
RoniLynn
Not sure if you’ll have a chance to read this, but please know I’m praying for comfort and strength. My mom was told in August by her oncologist that ‘they’ve exhausted all options’. No one wants to hear that, but mom continues to fight. She was diagnosed with NSCLC in 2008. And since she lives in a small town, no one suggested or offered clinical trials. And for the first 2.5 years mom was doing so well on chemo and radiation (no major side effects), that I never thought about researching trials until it was probably too late. Now after two strokes, Mom has good and bad days, but realistically we know her time is short-lived. What scares me is not knowing how long. She is also on Keppra and while on steroids she also experiences AWFUL mental confusion and hallucinations. It was SO scary. Another doctor finally suggested she be weened off and thank God she is finally back to ‘normal’ or at least thinking normally. I shudder to think her last few months on this Earth would be spent in such an awful limbo. My prayers to you and your family as we all continue to navigate this terrible disease. My goal is to remove the stigma of lung cancer once and for all.
January 2, 2012 at 10:09 am
robsadventure
Thanks so much for sharing your own story and your prayers. As caregivers it’s reassuring to know that we’re not alone. Have you attended the NLCP advocacy summit? If not, you should look into it this year – it was inspiring and provided me with so many tools to make a difference going forward. Sending bigs hugs to you and your family.